Eden's Heart

Sunday, September 7, 2008

5 years ago:

(yesterday)

In Grand Lake, Co

Just as the sun was setting

Joined by our closest friends and family

Brian and I united our lives.

(And had a blast celebrating!)

Even though this is a blog for our daughter, Eden, to share her amazing experience of waiting and recovering from a heart transplant. I can't help but feel it appropriate to honor this anniversary. In 5 short years we have endured so much as a young family. I couldn't be more grateful for the partner I chose to share this with (I'm sure that Brain feels the same!) and for the life we have made together. Happy Anniversary, My love.

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What is Hypertrophic Cardiomyopathy?

Hypertrophic Cardiomyopathy, is one of the four main types of cardiomyopathy. Characterized by the abnormal growth of muscle fibers on the heart muscle, HCM often results in a thickened septum and/or left and right ventricle. The thickening of the muscle can result in a resistance of blood flow both in and out of the heart’s chambers. When this occurs, the heart must work harder to pump blood throughout the body.

While perceived to be somewhat rare, HCM affects an estimated one in 500 people. It is the number one reason for heart transplants and the most common cause of sudden cardiac death in people under age 30. HCM may be best known for its role in cardiac arrest and subsequent death in some young professional athletes. The cause of HCM is largely unknown, however current research suggests it is genetic in origin.