Eden's Heart: A thousand words

Tuesday, August 18, 2009

A thousand words

I realize that this child and her incredible experience have changed my life like nothing else could. I view the world differently now, I do. Therefore, I spend most of my days looking through a narrowed lens and don't allow myself the chance to give and feel and be for others... like I once thought I would... like my friend, Gustavo Fernandez, does. We were lucky enough to at least take part in his recent venture.

We also came away with some breath-taking shots of our miracle girl. Just looking at these makes my heart skip a bit; I'm sure I could come up with a thousand words for each photo. Now if I could just put them on paper and send them to our donor family (we are allowed to make contact after a year), but I haven't gotten past "thank you..."

Thank you so much, Gustavo!

For more info on Gustavo's work and his HOGS for kids project go here and here. You'll be glad you did... he's amazing!

1 comment:

Gustavo said...: Loved capturing Eden's love for life and abundant energy, looking forward to doing it again soon!; September 10, 2009 at 12:06 AM

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What is Hypertrophic Cardiomyopathy?

Hypertrophic Cardiomyopathy, is one of the four main types of cardiomyopathy. Characterized by the abnormal growth of muscle fibers on the heart muscle, HCM often results in a thickened septum and/or left and right ventricle. The thickening of the muscle can result in a resistance of blood flow both in and out of the heart’s chambers. When this occurs, the heart must work harder to pump blood throughout the body.

While perceived to be somewhat rare, HCM affects an estimated one in 500 people. It is the number one reason for heart transplants and the most common cause of sudden cardiac death in people under age 30. HCM may be best known for its role in cardiac arrest and subsequent death in some young professional athletes. The cause of HCM is largely unknown, however current research suggests it is genetic in origin.