This has been the longest and scariest 2 days of our lives. I spent the night in Eden's room last night, while Brian was just down the hall in the lobby. He wasn't feeling well (from all the stress) and the first sight of Eden sent him over the edge. She had a very good night with only minor concerning issues. We started the day just before the shift change learning that Eden would be extubated. This is a very big step, as it means she would be breathing on her own. It also allows her to talk and drink. They slowly reduced her sedative which caused her to awaken even more. Unfortunately, she would get agitated and over stimulated with too much noise and touch. Most of the morning consisted of finding the right medication and sedative balance to keep up her respiratory function but to also allow her calm and rest.
She continued to do well throughout the day. They started giving her some water and then formula. She was pretty desperate for nourishment; she has even enjoyed sucking on swabs of Pedialite. She has already made us laugh a bit...asking for movies, Chaco and Zander. Her spunk really came out when she kicked the cardiologist and said "get away" in a drugged slur. However, most of the day she has been sleeping and moaning.
We have great support in all of our family here, along with our pastor and friend, Emily. Eden is allowed three guests at a time, but it didn't take long to realize how stimulated she would get with such a presence around her. We are happy to have visitors if you live in the area, but can't promise that you can see Eden. We are on the 3rd floor of The Children's Hospital and have staked claim in a corner of the CICU waiting room.
Please know how grateful we are for all of your thoughts, prayers and positive energy sent Eden's way. This girl is such a fighter and I can't help but believe that all of you and your love are the reason she continues. I will try to update more than once tomorrow - we have learned that she may be getting some lines removed and that I MAY BE ABLE TO HOLD HER! Her bandage should be coming off as well. This is all happening so fast...
2 comments:
Our thoughts and prayers are with you. You have amazing strength and have always stayed positive. We love you and yes I would love to come and give you a hug! Love always, Angela
Kera and Eden, I have yet to meet you but you are both already so close to my heart and I think of you often. I have known Brian for 16 years and can only imagine the special lady he'd of chosen as a wife and the beautiful girl you would create. I wish we could have met as planned at Christmas, but my little guy had a cold and I didn't want to expose Eden to anything that could be potentially harmful. I look forward to hearing everyday how well she is progressing and hope to meet you both soon when she is well. Stay strong and take care of each other. I have everyone I know here in Seattle sending positive energy your way. Big hugs to you all.
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