Eden had a good night last night and was finally able to sleep. She has shown signs of being much more comfortable and has been weaned from all pain medication but Tylenol. This is amazing enough to repeat.... Two days after a heart transplant she is only managed with Tylenol!!! This is not unique to Eden, as we have learned that most children are this tolerant of pain (It is the adults who seem to have trouble).
They continue to wean her other IV medicine as well and she is doing great. Her pace maker was disconnected, she is almost off of the blood pressure meds, and is even spending long periods of time without oxygen. The more medicine that is removed allows more freedom from the bed. We have held her again today and she has been through most of her movie selection. She is finally napping some also which should help with her irritability. They even expect her to try and walk today!
I realize that the pictures are a little hard to see. She has definitely not regained her camera pose, but that too will come with time. Thanks so much for your calls, cards, gifts and continued love and prayers.
3 comments:
You have quite a little fighter on your hands...You are all an inspiration. We are keeping you all in our thoughts and prayers.
Love, Paul, Angel, Bella and Ava Babcock
Only Tylenol??? Gosh you keep blowing us away with your strength and spunk there Eden! UNBELIEVABLE! The sight of you both holding Eden brings such joy and relief. We are so amazed and excited with Eden's fight to recover quickly. Blessings to you all!
~Alyssa, Mark and Mackenzie
Kera and Brian,
We have been sending energy not only to Eden Raine but also to you two and the extended family - Thank you so much for taking the time to write updates. We eagerly read them and are so glad things are going well. The updates and pictures help us feel so much more connected to this special angel.
love,
jim and maril crabtree
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