Fun at Home

Eden continues to do well. Her second visit back to the hospital was very positive. Her echo showed no fluid around the heart (which would indicate possible rejection problems) and her other vitals looked normal as well. We are struggling some to find the right dose of her anti-rejection medicine. They check her blood levels at every visit and adjust her dose accordingly. Her metabolism is working so much faster now and it may take a couple of weeks to get it right.


She is not eating as much as I would have hoped post transplant, but they say this should only improve with time. She has gained over half a pound since the surgery, although she is not quite back to her weight pre-transplant (which was probably a lot of water). The biggest difference is how much more positive mealtime has become. You can see that her silly personality has not changed.





















She has also really enjoyed taking care of her babies lately. I attribute this new behavior to all the care she received in the hospital. She especially loves to feed them and change their clothes.

We have also promptly put Eden back to work. She has always loved the cell phone, but more recently she has taken it to the next level. I can't imagine who she is imitating?!


Brian and I often say that Eden is handling the surgery and recovery much better than we are. We are learning a whole new disease to manage while trying to make life "normal" again. Eden has the wonderful luxury of oblivion and obviously, we are a little stressed. But we can take one look at this amazing little girl - her strength and resilience - and it's all worth it!